EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome Network C.A.R.E.S., Foundation is funding a critical treatment research initiative to be conducted at Johns Hopkins Medical Institution. EDS Network C.A.R.E.S., Inc. has raised over $60,000 to be donated to fund this life saving research to find treatment options for EDS that will reduce the deadly vascular fragility. The research will determine if the same mechanisms of destruction seen in Marfan syndrome and... (more)

EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome Network C.A.R.E.S., Foundation is funding a critical treatment research initiative to be conducted at Johns Hopkins Medical Institution. EDS Network C.A.R.E.S., Inc. has raised over $60,000 to be donated to fund this life saving research to find treatment options for EDS that will reduce the deadly vascular fragility. The research will determine if the same mechanisms of destruction seen in Marfan syndrome and Loeys Dietz syndrome, are also occurring in EDS. If so it is thought that the same various already FDA approved medications can be used for treatment of not only the vascular form of EDS, but eventually other types of EDS and collagenopathies. (less)