Organization Leaders
East Villagers (leader)
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Description

EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome Network C.A.R.E.S., Foundation is funding a critical treatment research initiative to be conducted at Johns Hopkins Medical Institution. EDS Network C.A.R.E.S., Inc. has raised over $60,000 to be donated to fund this life saving research to find treatment options for EDS that will reduce the deadly vascular fragility. The research will determine if the same mechanisms of destruction seen in Marfan syndrome and... (more)
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Category


Location:

United States

Website:


Focus:

Health and Medicine

Primary Language:

English
Organization Supporters (2)
East's Profile
Updated 1 month(s) ago
Member Rank: Owner
Karina's Profile
Updated 3 year(s) ago
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